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自闭症恢复健康的世界性的方向正在悄然地改变!!!

2008/12/8 12:54:16 来源:不详 作者:佚名 字体: 发表评论 打印此文


下面函件来自美国自闭症协会主席Lee Grossman先生于2007年9月27日的电子署名函件!这封邮件已经告诉我们
 
"Treatment Guided Research Initiative" (TGRI)------"以治疗为引导"是自闭症恢复健康的方向!这告诉了我们大家------整个世界的自闭症健康恢复局势已经正在悄然发生根本性转变呀!
 国外优秀机构介绍:ASA( Autism Society of America )

ASA is the oldest and largest grassroots organization within the autism community. Today, more than 120,000 members and supporters are connected through a working network of nearly 200 chapters nationwide.

The "Autism Society of America"(ASA) was founded in 1965 by Bernard Rimland, Ph.D. His book, Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior, was written in late 1964 and was one of the first of
its kind. In 1968, Ruth Sullivan, Ph.D. became the organization's first elected president. Over the last 40 years, the Society has grown from a handful of parents, into the leading source of information, research, and reference on autism. ASA is the oldest and largest grassroots organization within the autism community. Today, more than 120,000 members and supporters are connected through a working network of nearly 200 chapters nationwide. ASA membership continues to grow as more and more parents and professionals unite to form a collective voice representing the autism community.

ASA is dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact. The Society and its chapters share a common mission of providing information and education, and supporting research and advocating for programs and services for the autism community.

我是被这个课题折磨很久并曾受到很多误解指责的人。在国内无法获得支持的最初时间里就只有找“美国自闭症协会”(ASA)这个有十二万会员,全世界自闭症组织里面“最大最早的组织”寻求帮助和支持了!

以治疗为引导的研究项目(TGRI)

亲爱的炳熇,

你可以帮忙改变自闭症的过程

我写信给你是有关我们所开展的最重大的项目,叫做以治疗为引导的研究项目(TGRI)。TGRI是从茫无希望到治疗的一个向前的巨大飞跃,有潜力结束“我们无法治疗自闭症”的说法。

我们的目标是筹募150万美元来起动TGRI并支持我们的使命以帮助投资一个改革性的治疗范例,为现在许多个人和家庭提供新的选择。

TGRI是关于目前和如何的…而你如今的天赋让这个有可能了。

不管这些已有的许多的疗法和方法中不同之处如何,事实上我们能够并且应该马上帮助人们。自闭症已被归为无法治愈及无法治疗有许多年了。然而现今,我们摸索到它的很多结果性症状是慢性的,因此是可以治疗的。因为一些自闭症的病征造成痛苦、苦楚并使生活受限,所以发明并改良治疗方法是为医师、科学家和决策者们的非常优先要做的,并且构成一条道德上的义务。

为了做这个,我们需要你的支持。感谢你支持ASA,我们改进所有那些受自闭症所侵袭人们的生活。

怀有感激和希望的

李·格罗斯门

一个自闭症孩子的父亲

美国自闭症协会(ASA)会长

09/27 2007


关于美国自闭症协会(ASA)

从1965年成立以来,美国自闭症协会(ASA)一直到现在都是在讲究自闭症人群的需要。ASA是自闭症人群中最为广泛认可、最久的以及最大的落地生根的组织,有着12万多的成员和支持者,全美国有一个200多分会的网络。通过设在马里兰州的Bethesda(伯西斯达市)的总部的努力,保证筹募到了比其它任何组织都多的用于自闭症研究的资金。

以下为邮件原文(另有原来的函件原文):
 
Dear Binghe, You Can Help Change the Course of Autism

I am writing to you about one of the most significant initiatives we have ever undertaken called the "Treatment Guided Research Initiative" (TGRI). TGRI is a huge leap forward from hopelessness to treatment that has the potential to put
an end to the statement "We cannot treat autism".

Our goal is to raise $1.5 million dollars to launch TGRI and support our mission to help fund a transformational treatment paradigm providing new options for individuals and families now.

TGRI is about NOW and HOW...and your gift today makes this possible.

Regardless of the differences among the many treatments and approaches that already exist, the fact remains that we can and must help people now. For many years, autism has been characterized as incurable and untreatable. Today, however, we are finding that many of its resulting features are chronic and therefore treatable. Because some of autism's features cause pain, suffering and reduction of life options, making treatments optimal and available is a very high priority and constitutes a moral obligation for physicians, scientists and policy-makers.

In order to do this, we need your support. Thank you for supporting ASA as we improve the lives of all those affected by autism.

With gratitude and hope,

Lee Grossman
Father of a child with autism
President, Autism Society of America
 
 
作者后注:"Treatment Guided Research Initiative" (TGRI)------“治疗 引导 研究 主动性”
(TGRI)是自闭症恢复健康的方向!

这事实告诉了我们大家------整个世界都已经正在发生根本性转变了呀!
 
日期:
Tue, 18 Feb 2003 16:42:08 -0600
发件人: "Autism Society of America" <development@autism-society.org>  
收件人: anbinghe
主题: An Autism Awareness message from ASA
 


DID YOU KNOW?

Over 1.5 million Americans are affected by autism.

U.S. rate of growth over the last decade:
Population: 13%
Non-autism-related disabilities: 16%
Autism: 173%

Today 50 families in America will find out that their child has autism.

 

Dear anbinghe,

National Autism Awareness Month is more than a month away, so why are we sending you this important message now? Because autism is a 365 day-a-year battle and we can\'t afford to let another day go by without making the public
aware of this growing epidemic. More than ever, we need your help. Please forward the Autism Awareness Ribbon and our message to your family, friends, and co-workers.

You can also help by getting involved with your local community ASA chapter, urging your local representatives to promote autism-related support and services, or making a contribution to ASA. For more information click here or
visit www.autism-society.org.

Together we can generate the much needed attention that people living with autism so desperately need, not only during the month of April, but year round.
Thank you in advance for your support.

Sincerely,

Lee Grossman
ASA President


日期: Wed, 11 Jun 2003 15:05:56 -0500
发件人: "Autism Society of America" <development@autism-society.org>  
收件人: anbinghe
主题: ASA Evening of Champions!


An, you're invited to ASA\'s 2nd Annual Evening of Champions Dinner Event!

Please join us in beautiful downtown Pittsburgh for the 2nd Annual Evening of Champions Gala, July 19, 2003. This annual dinner event was established as a forum for the Autism Society of America (ASA) to celebrate and honor leaders in the autism community.

Among this year\'s honorees are Congressman Michael Doyle, founder and Co-Chair of the Autism Caucus, Dr. Nancy Minshew, Associate Professor of Psychiatry and Neurology at the University of Pittsburgh School of Medicine and Mrs. Audrey Horne, Immediate Past President of ASA and devoted parent advocate.

This year the event will be at the renowned Omni William Penn Hotel, a 1916 historical landmark elegantly renovated for the 21st century. The event will be held on Saturday, July 19, 2003 at 7 p.m.

Sponsorship opportunities and tickets are still available, so please join us as we honor champions in the autism community. Click here to reserve your seats or visit www.autism-society.org/champions .


日期: Wed, 25 Jun 2003 13:58:05 -0500
发件人: "Autism Society of America" <conference@autism-society.org>  
收件人: anbinghe
主题: Join us in Pittsburgh! Hurry, space is limited!

Dear Friend of ASA:

I hope we can see you in Pittsburgh July 16-20 for the 2003 National Conference on Autism.  If you act today and register online through our fast, secure online registration feature and pay with a major credit card, you can take
advantage of a special discounted rate of $200.  For more information, click here.   

Highlights of the conference include:

Claude Allen, Deputy Secretary, United States Department of Health and Human Services

Temple Grandin, Ph.D. - keynote speaker

Robert Pasternack, Assistant Secretary for Special Education and Rehabilitative Services (United States Department of Education)

Special Sessions on: homeschooling, choosing a college, the "graying" of autism, and much more Over 40 special exhibitors

Time is running out.  I encourage you to register today.

Sincerely,

Rob Beck
Executive Director
Autism Society of America

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